Real Stories


Sometimes, in the technical discussions of research, or in the exciting and hard work of fundraising, the real stories of children living with SMA gets lost. Here is a chance to see first hand what life with SMA is like. Here is a glimpse into the realities of what we are fighting and the children we are dedicated to saving. We hope you never forget that your dollars are more than a tax deduction or a researchers salary, you are the hope these children are holding onto.


Skylar's Story

Jacob's Story

Elizabeth's Story