Standard of Care Conference Panel Bios
Panel Members

Dr. Ching Wang

Dr. Ching Wang is the director of Lucile Packard Children's Hospital's neuromuscular disorders clinic and an associate professor of neurology and pediatrics at Stanford School of Medicine. His research activities cover both basic molecular neurogenetics and clinical trials in spinal muscular atrophy. Dr. Wang's research lab at Stanford is currently using cellular and animal models to study the pathogenesis of motor neurons diseases. His clinical research team is currently engaged in therapeutic trials in an attempt to identify effective therapeutic agents for children with spinal muscular atrophy.

Dr. Wang received his Ph.D. in Neuroscience and his M.D. from Northwestern University. He completed his internship and residency at the Medical Center of Dallas and a Fellowship followed at the Neurological Institute of New York. He is a member of the International Coordinating Committee (ICC) for Clinical Trials and was the driving force behind the "Consensus Statement for Standard of Care in SMA." Dr. Wang began serving as the Medical Director for the Hope and Light Foundation in 2008.


Dr. Gary Bassell

Dr. Gary Bassell is an associate professor of cell biology at Emory University. He received his Ph.D. from the University of Massachusetts Medical Center. The main research interest of the Bassell laboratory at Emory is to understand the mechanism and function of mRNA transport and local protein synthesis in neurons of the central and peripheral nervous system. The lab is using in vitro and in vivo models of synaptic activity and nerve injury, as well as mouse models of neurological diseases, to assess the function of mRNA regulation in axon guidance, nerve regeneration and synaptic plasticity. Dr. Bassell's research team has a long-standing interest in the mechanism, regulation and function of beta-actin mRNA localization to growth cones of developing axons. More recently, they have been interested how impairments in mRNA regulation may underlie spinal muscular atrophy (SMA) and fragile x syndrome (FXS). Efforts are also underway to evaluate different therapeutic modalities in these mouse models. Their research utilizes a multi-disciplinary approach that involves primary neuronal culture, brain/nerve micro-dissection, viral vectors, fluorescently tagged mRNA and proteins, fluorescence live-cell imaging, and molecular and biochemical methods to isolate and characterize RNA-protein interactions. These studies will provide new insight into molecular and cellular mechanisms important for neuronal development and plasticity, as well as into defects in these pathways that underlie neurological diseases.


Dr. Mary Schroth

Dr. Mary Schroth is the Director of the Pediatric Pulmonary Center Training Grant and is a Pediatric Pulmonologist at the American Family Children's Hospital and the University of Wisconsin Children's Clinics. She graduated from the University of Wisconsin Medical School and completed her Pediatric residency and Pediatric Allergy and Pulmonary fellowship training at the University of Iowa Hospital and Clinics. Dr. serves on the faculty of the University of Wisconsin School of Medicine and Public Health. She is board certified in Pediatric Pulmonology. Dr. Schroth is recognized as a national leader in the respiratory management of children with neuromuscular diseases.


Dr. Leslie Morrison

Dr. Leslie Morrison received her MD Degree from the University of New Mexico Health Sciences Center in 1987 and completed residency training in Pediatric Neurology at Johns Hopkins University. She earned a fellowship in Pediatric Neurology and is board certified in Neurology, with special competence in Child Neurology. Dr. Morrison is a professor at the University of New Mexico Department of Neurology. She is vice chair of neurology, Assistant Dean of Academic Affairs and division chief of Child Neurology. Her special interests and expertise are Neurogenetics and Neuromuscular Disorders. Dr. Morrison trained in Physical Therapy and practiced in pediatric settings for 5 years prior to medical school.


Dr. Brenda Wong

Dr. Brenda Wong received training in General Pediatrics and worked as a pediatrician for a few years before doing her three-year Child Neurology fellowship at Children's Hospital Medical Center, Cincinnati.

Dr. Wong also received training in Pediatric Neuromuscular Disorders at Hammersmith Hospital, London with Dr. Victor Dubowitz and Dr. Francesco Muntoni. Dr. Wong's training in EMGs was accomplished with Dr. John Quinlan at Department of Neurology, University of Cincinnati.

Post fellowship training, Dr. Wong was practicing child neurology in private practice prior to joining Children's Hospital Medical Center of Cincinnati in 1999. Besides general neurology patients, Dr. Wong sees patients with neuromuscular disorders in the Neuromuscular Clinic and provides diagnostic services like EMGs and evaluation for muscle biopsies. Comprehensive management is supported by the Department of Rehabilitative Medicine, Pulmonary Medicine, Pediatric Orthopedics and the Muscular Dystrophy Association.


We are excited to announce Dr. Ann-Marie Brooks and Dr. Edward Goldstein of Children's Hospital of Atlanta will join our afternoon panel discussion!


Dr. Ann-Marie Brooks

Dr. Ann-Marie Brooks earned her undergraduate degree from Brown University. She completed her medical school training at Cornell University and followed that with the completion of her pediatric residency and chief residency at the University of Rochester-Strong Memorial Hospital. Dr. Brooks stayed at the University of Rochester to complete a unique, dual fellowship program in pediatric pulmonology and general academic pediatrics. This program allowed her to incorporate graduate studies in Public Health and Epidemiology into the standard general pediatrics and pulmonology curriculum.

Dr. Brooks moved to Orlando, Fl in 1999 and accepted a combined research and clinical position with The Nemours Foundation and Children's Clinic. She served as clinical instructor for the pediatric residency program at Arnold Palmer Children's Hospital and pursued several community based research projects in the area. In 2004 she began serving as Assistant Professor at the Medical University of South Carolina. She joined Georgia Pediatric Pulmonology Associates in March 2006.

Dr. Brooks is skilled in all areas of pediatric pulmonology including bronchoscopy. She has particular interest in early childhood asthma, chronic lung disease of prematurity and the pulmonary sequelae of muscular disorders. Board certified in pediatric pulmonology, Dr. Brooks is a Fellow of the American Academy of Pediatrics, and a member of the American Thoracic Society and National Medical Association


Dr. Goldstein

Dr. Edward Goldstein attended college in his home state of Wisconsin, obtaining a degree in molecular biology with honors, and graduating Phi Beta Kappa from the University of Wisconsin at Madison. He then attended medical school at the Johns Hopkins University School of Medicine, graduating as a member of Alpha Omega Alpha in 1981. Dr. Goldstein stayed on at Johns Hopkins to complete residencies in both pediatrics and neurology, finishing his training as chief resident in neurology in 1990.

Dr. Goldstein joined Child Neurology Associates in 1990 and has worked steadily to the present, with the exception of a break in 1993 to complete a fellowship in EMG/Neuromuscular Disease at Emory University. After returning from this fellowship, Dr. Goldstein started the Muscular Dystrophy Association Clinic at Children's Healthcare of Atlanta's Scottish Rite Campus, where he remains the Medical Director. He was also involved in establishing the Spasticity Treatment Center and Brachial Plexus Reconstruction Center at Scottish Rite.

Dr. Goldstein is certified by the American Board of Pediatrics and by the American Board of Psychiatry and Neurology (ABPN) in neurology, with special qualification in child neurology. He is a member of American Academy of Neurology and the Child Neurology Society.

Dr. Reyna

Dr. Sandra P. Reyna received her M.D. from University of San Carlos in Guatemala City, Guatemala. She subsequently completed a clinical externship in pediatrics at Primary Children's Medical Center in Salt Lake City before pursuing a research career in clinical genetics. She worked as a research physician in cardiovascular genetics for many years before joining Dr. Dr. Kathryn Swoboda in 2003 to co-direct the Pediatric Motor Disorders Research Program at the University of Utah's Department of Neurology.

Dr. Reyna is the Clinical Trials Manager for Project Cure Spinal Muscular Atrophy (SMA), a multi-center international collaborative initiative between Families of SMA and clinical investigators designed to help facilitate the rapid translation of promising new therapies to clinical trials for SMA patients.

Breakout Sessions and Workshop Presenters:

Krosschell

Kristin Krosschell, PT, MA, PCS is an Assistant Professor with the Feinberg School of Medicine at Northwestern University. She earned her BS in Physical Therapy from Sargent College. Kristin Krosschell is an Assistant Professor Feinberg School of Medicine at Northwestern University. She earned her BS in Physical Therapy from Sargent College. Kristin graduated from Boston University with an MA and earned an MA in Motor Learning from Teacher's College Columbia University.

Her research focus has been on the development of functional outcomes for children with spinal muscular atrophy (www.smaoutcomes.org) and has been involved in clinical trials exploring the effects of medication on strength and functional abilities for those with SMA. She is currently involved in natural history and clinical trials as a member of Project Cure SMA.

Kristin's interest in clinical outcomes and standard of care for children with SMA continues to evolve as a member of the International Coordinating Committee for SMA (ICC-SMA) and as a member of the ICC Standard of care Committee. Kristin is an active member of the American Physical Therapy Association and serves on the Families of Spinal Muscular Atrophy Medical Advisory Board.

Vngsdal-Krenz

Rhonda Yngsdal-Krenz, BA, RRT is a Respiratory Care Supervisor of University of Wisconsin Children's Hospital and Clinics. For the Pediatric Pulmonary Center Training Grant, she is the Respiratory Care Education Director. She is also the ECMO coordinator for the UWHC and is a member of the Pediatric Transport Team and serves on the Asthma Coalition of Wisconsin. Rhonda obtained her Respiratory Care degree in Madison, Wisconsin and upon completion began working at the University of Wisconsin Hospital and Clinics. She is a registered Respiratory Therapist as well as a Neonatal Pediatric Specialist. Rhonda has continued with her education to obtain her MBA.

We would like to thank our exhibitors for their generous support.

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